China’s national guidelines for the Diagnosis and Management of Primary Ciliary Dyskinesia in children (Patient Version)

Title: China’s national guidelines for the Diagnosis and Management of Primary Ciliary Dyskinesia in children (Patient Version)
Edition: Original
Classification: Standard guideline
Field: Diagnosis and Treatment
Countries and regions: China
Guidelines users: The primary users of this guideline include PCD patients and their families, caregivers, as well as the general public and educators interested in PCD.
Evidence classification method: The quality of evidence was graded using the GRADE (Grading of Recommendations, Assessment, Development, and Evaluation) system. According to the GRADE framework, evidence is categorized into four levels: high, moderate, low, very low. The classification is based on study design, quality, consistency, directness, and effect size. For each diagnostic and management recommendation, the strength of the recommendation (strong or weak) will be determined based on the quality of evidence and its clinical applicability.
Development unit: China Medicine Education Association Committee on Pediatrics
Registration time: 2024-10-08
Registration number: PREPARE-2024CN760
Purpose of the guideline: To provide scientific and evidence-based disease diagnosis and management guidance for children with primary ciliary dyskinesia (PCD) and their caregivers in China.