| 标题： | 中国儿童原发性纤毛运动障碍诊断与治疗循证指南（患者版） |
| title： | China’s national guidelines for the Diagnosis and Management of Primary Ciliary Dyskinesia in children (Patient Version) |
| 版本： | 原创版 |
| version： | Original |
| 分类： | 标准指南 |
| classification： | Standard guideline |
| 领域： | 诊疗 |
| field： | Diagnosis and Treatment |
| 国家和地区： | 中国 |
| Country and region： | China |
| 指南使用者： | 本指南的主要使用者包括PCD患者及其家属、照护者，以及对PCD有兴趣的公众和教育工作者。 |
| Guide users： | The primary users of this guideline include PCD patients and their families, caregivers, as well as the general public and educators interested in PCD. |
| 证据分级方法： | 采用GRADE（Grading of Recommendations, Assessment, Development, and Evaluation）进行证据的评估和分级。依据GRADE系统，证据分为高、中、低和极低四个等级，主要考虑研究设计、研究质量、一致性、直接性和效应量等因素。针对每一项诊断和管理建议，我们将根据证据的等级和临床应用的可行性，进行推荐的强度分级：强推荐和弱推荐。 |
| Evidence grading method： | The quality of evidence was graded using the GRADE (Grading of Recommendations, Assessment, Development, and Evaluation) system. According to the GRADE framework, evidence is categorized into four levels: high, moderate, low, very low. The classification is based on study design, quality, consistency, directness, and effect size. For each diagnostic and management recommendation, the strength of the recommendation (strong or weak) will be determined based on the quality of evidence and its clinical applicability. |
| 制定单位： | 中国医药教育协会儿科专业委员会 |
| Formulating unit： | China Medicine Education Association Committee on Pediatrics |
| 注册时间： | 2024-10-08 |
| Registration time： | |
| 注册编号： | PREPARE-2024CN760 |
| Registration number： | |
| 指南制订的目的： | 旨在为中国儿童原发性纤毛运动障碍（PCD）患者及其照护者提供科学、循证的疾病诊断与管理指导。 |
| Purpose of the guideline： | To provide scientific and evidence-based disease diagnosis and management guidance for children with primary ciliary dyskinesia (PCD) and their caregivers in China. |
